The parent room conversation I wish I could have had with Ashya's mum

The parent room conversation I wish I could have had with Ashya's mum

December will mark 10 years of me riding the "parent of a medically complex child" roller coaster, I have seen a lot of things, been through a lot and I guess I can sometimes find myself in the position of sharing my experience and thoughts with other parents.

Often the best conversations I have had have been in the parent's rooms of children's wards, late at night when you try and have a few moments over a cup of catering tea, flicking through gossip magazines without really taking them in, your mind preoccupied and mulling over the day's discussions with the medical team.

I can imagine Ashya King's mum, sitting in the parent's room at Southampton Hospital, I know how she would be feeling - surviving on adrenaline and coffee, exhausted beyond the point of exhaustion, worried, stressed, trying to keep all the plates spinning - staying at her son's bedside while being a mum for her children back home. Her husband spending hours on the internet, trying to come up with the information they need, the breakthrough so that they can have their little boy back home and well again. - See more at: http://www.wasthisintheplan.co.uk/2014/09/the-parent-room-conversation-i-wish-i.html#more

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