A while before the Easter holidays, the Cheetah Keeper had his first appointment with our community paediatrician. I’d always been told that a referral to this team wasn’t worth it because the Cheetah Keeper was ‘so complex’ so we’ve managed, up until now with a team of consultants spread around various hospitals – none of whom talked to each other but we managed.
The Cheetah Keeper is now at an age where the formalising of an Ehlers Danlos Syndrome diagnosis could be made and in addition, his behaviour during the Autumn term was very definitely cause for concern that required a medical view taking. Our referral went through, our appointment didn’t come, we chased, we chased and suddenly, as if by magic, an appointment suddenly became available. We took it.
The sudden availability was due to the fact they had taken on a Locum consultant paediatrician for 2 weeks. She told me that. She also told me she was only doing it for the money. That didn’t sit well with me (at all). To the extent it has taken me nearly 2 months to be able to sit down and type this without wanting to hit something, hard.