When you’ve got Ehlers Danlos Syndrome everything is affected, to some degree or another. As I’ve said before, no-one presents with exactly the same symptoms and when you’ve got a bit of an EDS genetic mash up like we seem to have, those symptoms become even less ‘text book’ than a patient who has a classical form of EDS.
The Sealion Keeper, the Cheetah Keeper and I all have problems with our feet to some extent. I realise now (about 25 years too late) is all the pain I had in my feet when I was a child when I jumped off or down from things was actually my feet partially dislocating. I can’t explain quite how much this hurts – although it hurts less than the stress fractures that I have been plagued with throughout my adult life. Buying shoes for Ehlers Danlos Syndrome ridden feet is a major challenge, for all of us.