Raising awareness of Ehlers Danlos Syndrome - an under diagnosed rare condition

Raising awareness of Ehlers Danlos Syndrome - an under diagnosed rare condition

Lara Bloom, who runs the Ehlers Danlos UK Support charity, is making a documentary about EDS to help raise awareness of what is a rare but also an under-diagnosed condition. Ehlers Danlos is a connective tissue disorder that Son2 has. He regularly has dizzy spells, joint pains and extreme fatigue.

Like this?Read more…

Recommended by Special Needs Jungle

Love Birds Cake: It Is Easy – Promise!

Soak me, Salt me, and Badger me Up!