I've just accepted a voluntary role as a parent service user working with providers and parents for our local Short Breaks Provider (supporting disabled children) and am incredibly excited about it. Regular readers will know I am passionate about raising awareness disabilities, "hidden" ones in particular, hoping that in raising awareness we can normalise future outcomes for children with additional needs.
The role really "fits", giving me a wonderful and unique opportunity to use my skills and experience in a flexible position that allows for the often unpredictable family life that is our reality. And it's precisely that reality that has led me to consider - and even focus - on disability and additional needs. In many ways I'm profoundly grateful that I no longer live in a surreal bubble, blissfully unaware of the daily challenges many face in this area.
But I would be lying if I didn't sometimes feel rather weighed down, longing for liberation and the mythical ease of existence other parents apparently have.
Creative Commons/ Flickr copyright Irwandy Mazwir