I have Costello Syndrome, Costello Syndrome does not have me

29 May

I have amended this quote from one I saw on the back of a running vest as I ran the Bupa London 10k on Sunday – the quote I saw was “my name is Jo, I have MS, MS doesn’t have me”. That really inspired me.

If Daisy could talk fluently and tell you how she felt then I think she would say this because this is how she lives her life.

Every single day is a monumental challenge for Daisy and truly I do not believe even those closest to her know what a challenge it is

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