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What It’s Like Living In This Household

16 May

Short answer: It’s chaotic. Long answer: It is supercalifragilisticexpialidocious. According to the film Mary Poppins it means ‘something to say when you have nothing to say.’ And, indeed, there is nothing to be said to be said except… Living in this household means that you will be in a constant state of pessimistic optimism. How [...]

Making the Disabled Children’s Charter a health priority

09 May

As you are hopefully aware, the beginning of April saw a massive shake-up in the NHS and the creation of GP-led Clinical Commissioning Groups as well as Health and Wellbeing Boards. But with the many priorities that these new bodies will have, the charities Every Disabled Child Matters and The Children’s Trust, based at Tadworth [...]

Parent-Child Led Activities with Disabled Children

07 May

It is known that warm and responsive parenting is optimal for child development. A study* has found that “the parents of children with disabilities and suspected delays evidenced significantly lower levels of warmth and less frequent parent–child activities compared with other parents.” Like this?Read more… Recommended by Pinkoddy’s Blog

SEN protection to age 25 – unless you go to university

30 April

I’ve been pondering on the SEN section of the Children & Families Bill for a while and I am perplexed by what seems to be an anomaly for some 18-25 year olds. Apprenticeships will be covered by the EHCP, as will further education. But not Higher Education at universities. Like this?Read more… Recommended by Special [...]

Our son’s rare disease sparked a search for answers- and support

23 April

I am often contacted by desperate parents searching for help with finding the special needs solutions for their children. It’s something that Helen Renouf never imagined herself having to do. She had never had to worry about SEN support for her son Jake, until he became a teenager and his health began to deteriorate. Like [...]