I was going to call this post “Fatigue in Ehlers Danlos Syndrome” but that sounds a bit grown up and medical so I thought I’d go for the outright question, Does Ehlers Danlos Syndrome Make You Tired? Now, this could be a really short post because there is one utter, complete, sky writeable and overwhelming [...]

My Dad before he passed away in 2002 he had been a diabetic from the age of 12, living with the condition for around 44 years! I had never known anything other than watching the time, counting carbs, insulin injections … Continue reading → Like this?Read more… Recommended by Mum in Meltdown

So I said a while back in my ENOUGH IS ENOUGH post that I would give up smoking, start exercising again and join weight watchers; I set myself the task of starting all these on one particular day! Well I can tell you now that didn’t happen but I have made progress… Like this?Read more… [...]

Though it sounds fairly ominous, especially for anxiety-ridden first-time parents, hip dysplasia is not as uncommon as one might think. More commonly diagnosed with first-born girls (.04% of live births) the condition can easily be treated without lifelong symptoms or special needs. Like this?Read more… Recommended by A Mummy’s View

I’m not one for exercise classes, I never have been. I’m not up for the whole “GO GO GO” rallying together thing, when I work out I’m a loner. At the gym I was a headphone in, head down kinda girl, only breaking free for a gossip in the Jacuzzi. I was crap at doubles [...]

This is a photo of gorgeous Max. But, it is one of the last photos that his mum Caroline has of him as Max is no longer with us. He is now playing with the other angels in heaven… Max Earley was just 2 years old when he passed away. He was vomiting daily and [...]

I had my first mammogram when I was fifty, and when I received the letter to have another at fifty-two, I thought no problem. So last week before leaving for camping I went for a mammogram, and was told if there was an issue, they would call me. Off camping I went with no worries. [...]

Tonsils. Bastard Gone Wrongsils. Covered In Pustules. Doctor Supplies Pills. Like this?Read more… Recommended by The Ramblings of a Formerly Rock’n’Roll Mum

Ever since Harri was born we have had issues with her feeding. We have been to the Doctors almost every week. Initially the one of the GP’s we have seen said that it was because her tummy was too small and she was over eating, then they said don’t worry she was gaining weight but [...]

I thought it may be helpful to try to explain the illnesses that I have and the treatments that I am hoping to have. This is in no way intended to be a “woe is me” as I do know there are many people who are far more ill than myself. However, I thought I [...]

I basically struggled to think of an excuse why we couldn’t go, so at 6 pm this evening I found myself preparing to get into the lake. Before getting anywhere near the lake, I had to squeeze myself into my wetsuit. Not only is it two years since I last put the wetsuit on, I’ve [...]

In case you were not aware Emma Day, who blogs over at Crazywithtwins, has Cancer Again. She is only 27 years old and Mother to one year old twin girls plus a six year old singleton daughter. She had to have a hemithyroidectomy and the results showed that due to the results on the right [...]

I’m writing this post as part of Ehlers Danlos Syndrome Awareness Month, with which both Son2 and myself have recently been diagnosed, along with Postural Orthostatic Tachycardia Syndrome (POTS) and Chronic Pain. It’s a fearsome triumvirate rolled into one, like Cerberus, the three-headed mythological dog that guards the entrance to Hades Like this?Read more… Recommended [...]

A number of years ago, I was on a return flight home with my sister from a vacation in Ireland, when something happened. The flight itself was pretty nonsequential, until about half-way through I developed what I like to refer to as an “itch”. Like this?Read more… Recommended by AlwaysARedhead

Relocating to the UK with a baby who started vaccination in another country proved to be quite complicated. When we first came to London, Baby Lu was 10 months old. He had had a series of vaccines under the Greek immunisation schedule and we had to make sure he would have all his routine vaccination [...]

As a result it was recommended I try acupuncture.  Yeah right, it’s all mumbo jumbo and voodoo isn’t it? Well I’m telling you it really, really works!!!  It’s not for everyone I grant you, but it has improved my pain management no end. I feel great, so great I just Like this?Read more… Recommended by Me, [...]

What’s a ‘normal’ or ‘average’ day for any family? Get up, breakfast, school/work, home, eat, bed? With the normal essentials of washing, homework and ‘jobs’, hopefully something cool/relaxing/engaging to do in free time and generally having the chance to just ‘be’. With 3 of us in this household with Ehlers Danlos Syndrome – Type III [...]

So in my post ‘Enough is Enough‘ the other day I mentioned that the nicotine patches would be going on today so I thought I’d give an update of how I’ve got on! I’ve never used nicotine patches before, I’ve given up twice before and both times had a prescription from the doctors. The first [...]

These past few months have been hell for me, which I am sure quite a few of you are aware of, if you follow my tweets. First it started with a particular drug manufacturer to all of a sudden, without notice to its customers, stop making the one and only muscle relaxant that I have [...]

The pat pat pat of my trainers on asphalt. The squish squish squish of my running shoes on the grassy verge. The snap snap snap of twigs under foot being shush shush shushed by the leaves on the trees lining the lane. Branches coming together overhead to guard my serenity – entwining their fingers to [...]